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Betsy Grunch, MD | Neurosurgeon · 317 words · 2 min read · EN
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Most people have never heard of Lewy body dementia, but many physicians believe it's far more common than we once thought. A recent review is bringing renewed attention to the condition after reports surrounding Ted Turner and his diagnosis. Now, Lewy body dementia is a progressed neurodegenerative disease that's caused by abnormal protein deposits called Lewy bodies that build up inside of the brain.
Now these deposits disrupt normal brain signaling and can affect multiple systems all at once, which is why this disease can look very different from patient to patient. And it is different than Alzheimer's disease. And one of the reasons it can be so difficult to diagnose is because it often overlaps with features of both Alzheimer's disease and Parkinson's disease.
Patients may experience memory and cognitive decline, fluctuating confusion or alertness, visual hallucinations, tremored or slowed movement, sleep disturbances, personality or behavioral changes. And one of the hallmark features is that the symptoms can fluctuate dramatically Families can describe patients often seemingly completely normal one day and then the next day can be profoundly confused
And in many cases, people are initially misdiagnosed with Alzheimer's disease, psychiatric illness, or Parkinson's disease before the true diagnosis becomes clear. And unfortunately for Lewy body dementia, there is no cure. The treatment focuses on managing the symptoms, improving the quality of life, supporting cognition and movement, optimizing sleep, and helping caregivers navigate what can
be an incredibly challenging disease progress. And as our population ages, awareness of conditions like Lewy body dementia become more and more important because early recognition really does matter not only for patients, but for families who are trying to understand why their loved one is changing in ways that feel very confusing, frightening, and unpredictable. The more we talk
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